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carers, patients

brainstrust

With brainstrust's 24/7, 365 days a year support line, patients, carers and families can pick up the phone or email and know that they will have an immediate response, an empathetic response that is grounded in reliable source material, and one that is personal.

hello@brainstrust.org.uk www.brainstrust.org.uk

carers, patients

Brain Tumour Support

Brain Tumour Support offer a range of online and face to face support groups These groups are open to anyone affected by a brain tumour. Full details can be found on the website: www.braintumoursupport.co.uk or by phoning 01454 422701, or emailing support@braintumoursupport.co.uk

support@braintumoursupport.co.uk www.braintumoursupport.co.uk/events/category/support-group/

carers, patients

Headway Rotherham

carers, patients

Headway Rotherham

Headway Rotherham provide information and support to people with a brain injury, their families and carers.

S62 7HJ info@headwayrotherham.org.uk www.headwayrotherham.org.uk

carers

Treetop Hospice Care

Treetops Hospice offer support and counselling to children and adults who have been bereaved from any cause.

All services are provided free of charge, and are not means-tested.

The service is available to all users of Treetops Hospice services and people registered with a GP practice in Derby city or Southern Derbyshire.


DE72 3SS info@treetopshospice.org.uk https://www.treetopshospice.org.uk/our-services/therapeutic-services/counselling-and-emotional-support-service/counselling-and-emotional-support-service-for-adults-dealing-with-bereavement/

carers

Carers Trust

This services offers carers in the Sheffield area;


1. Carer Advice Line

Call us for personalised expert advice on anything related to your caring role. One of the team is an Urdu and Punjabi speaker, and we use an interpretation service for other languages.

2. Carer Card

This offers discounts on a wide range of services, products and activities from local and national businesses; plus there is space to record two emergency contact numbers.

3. Carer Activities

We organise a range of regular activities for carers to have a break from their caring role and look after their own wellbeing. Event details are kept up-to-date on the 'activities' page of our website.

4. Carer Support Groups

The Support Groups take place at various locations around Sheffield on a regular basis. They provide a great opportunity to meet other people with caring roles.

5. Carer Connect

This is our telephone support service that provides regular phone calls from volunteers to reduce social isolation and connect carers with their local communities.

6. Legal Advice Clinic

Free 30-minute individual legal advice sessions with a legal expert, offering advice around topics such as wills, estate planning and power of attorney. Clinics are held on a monthly basis.

7. Emergency Planning

We provide information to help carers make an emergency plan if something unexpectedly stopped them from looking after the person they care for.

8. Carer Money Matters

This project can help carers with fuel costs, energy efficiency, and home safety including specialist support from Citizens Advice Sheffield.

9. Information and resources

Easy access to a range of information and resources on our website from expert sources covering more than 20 topics to help with your caring role.

10. Digital Resources for Carers

Carers can access the free online ‘Digital Resources for Carers’ which is provided by Carers UK and Sheffield City Council, that includes information, eLearning, resources, and the Jointly app.

11. Carers News!

This free monthly E-newsletter provides up-to-date information about our services and activities, along with key news items that affect carers.

If you are caring for an adult who lives in Sheffield you can also access the following support:

12. Carer's Assessment

A carer’s assessment provides an opportunity to discuss the impact of your caring role with one of our Carer Advisors, who will discuss the support you might need and help put this in place.

13. Time for a Break Grant

Small grants for short breaks or activities that support wellbeing and help you take a break from your caring role. We’ll assess your eligibility as part of a Carers Assessment.


S1 2BX office@sheffieldcarers.org.uk https://www.sheffieldcarers.org.uk

carers, patients

Rotherham Metropolitan Borough Council and Macmillan

This service is provided through telephone advice, hospital and office appointments. Access to the service is by referral from any health professional or self referral. Specific services include: applying for benefits, challenging benefits decisions and tribunals, accessing Macmillan and other charitable grants, applying for blue badges and help with bereavement benefits.

S60 1AE Katy.Lewis@rotherham.gov.uk https://www.rotherham.gov.uk/benefits/benefit-advice-people-living-cancer

carers

This telephone support line, run by trained volunteers, offers information and guidance to all those caring for a child or young person, who has someone important in their life, who has died or is dying. They also offer support groups across the County of Hampshire. They provide children and their families with safe, creative and compassionate spaces where they can explore their grief. Groups are gently guided by volunteers through organised activities, games, and stories.

SO51 9LQ info@simonsays.org.uk www.simonsays.org.uk/support-and-help/support-line/

carers, patients

Rotherham Day Hospice

carers, patients

Rotherham Hospice

Rotherham Hospice provide support for people over the age of 18 who are living with a terminal illness and their families. The services they provide include: counselling, practical advice, complementary therapies, inpatient services and hospice at home.

S60 2SW reception@rotherhamhospice.org.uk www.rotherhamhospice.org.uk

carers, patients

Maggie's - Dundee

carers, patients

Maggie's

Maggie's centre in Dundee offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.


DD2 1NH dundee@maggies.org https://www.maggies.org/our-centres/maggies-dundee/

carers, patients

Citizens Advice Bureau and Macmillan

Citizens Advice Wandsworth & Croydon and Macmillan Cancer Support work in partnership to provide specialist support for people living with cancer.

This service provides information and advice on benefits, grants and being able to access support needed to pay the bills or meet extra expenses.

This service is open to everyone living or receiving treatment near Croydon, Kingston, St George's and Epsom and St Helier hospitals.

SW11 1JB www.cawandsworth.org/macmillan/

carers, patients

The Macmillan Information and Support Centre in Queen's Hospital, Romford, provides information and support for people living with and being treated for cancer within Barking, Havering and Redbridge University NHS Trust. Services include benefits and welfare advice, wig referrals and complementary therapies.

RM7 0AG bhrut.cancerinfoandsupport@nhs.net www.bhrhospitals.nhs.uk/macmillan

carers, patients

Citizens Advice - Barnet

carers, patients

Citizens Advice

A confidential, impartial and independent welfare benefits service for people living with cancer, their families and carers living in the Barnet area.Regular Outreach location times are as follows:


Mondays

10am to 2pm at St Mary’s Church Hall, 30 Hendon Lane, N3 1TR


Tuesdays

12pm to 2pm at Chipping Barnet Foodbank†, 63 Somerset Rd, New Barnet, Barnet EN5 1RF


Wednesdays

9:30AM to 12:30PM at Jim’s Cafe, St James Church, 71 East Barnet Road, New Barnet, EN4 8RN


Saturdays

10:00AM to 12:00PM at Chipping Barnet Foodbank†, 63 Somerset Rd, New Barnet, Barnet EN5 1RF

www.barnetcab.org.uk

carers, patients

The Rosemount Centre

Based in Aberdeen, The Rosemount Centre offers a wide range of therapies and workshops, such as cognitive behavioural therapy, rational emotive behavioural therapy, hypnotherapy, acupuncture and mindfulness life coaching. Please give the centre a call or send an email for both inquiries into therapies and to book an appointment.

AB25 2RA admin@rosemountcentre.com www.rosemountcentre.com/a-variety-of-therapies/counselling/

carers, patients

brainstrust website

carers, patients

brainstrust

A website with a wealth of information to help you following a brain tumour diagnosis. Sections include, brain tumour support, brain tumour treatment, resources, brain tumour symptoms and diagnosis, patient stories, information for carers, survivorship and more.

PO31 7QG hello@brainstrust.org.uk www.brainstrust.org.uk

carers, patients

Citizens Advice - Croydon

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion.

SE25 4PQ www.citizensadvicecroydon.org

carers, patients

If you are aged 18 and above, and resident in Lower Marr (Deeside), you can make your initial appointment by phoning MHA's confidential number to leave a message. They will discreetly return your call, usually within three working days, to agree an initial meeting. This meeting lasts around 30-60 minutes at which time you can discuss:


What has prompted you to seek counselling

The kind of help that matches your needs

What One to One can offer you, as a client

Whether we know of any other more appropriate services


You will then be added to their waiting list and matched with a suitable counsellor as soon as one becomes available.

onetoone.admin@mhaberdeen.org.uk https://mha.uk.net/get-support/one-to-one

carers, patients

Maggie's - Nottingham

carers, patients

Maggie's

Maggie's centre in Nottingham offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.


NG5 1PH nottingham@maggies.org https://www.maggies.org/our-centres/maggies-nottingham/

carers, patients

Macmillan website

carers, patients

Macmillan

An online resource for people affected by a brain tumour. Information includes information on brain tumours, including brain tumour diagnosis, brain tumour treatment, possible side effects and how to get further brain tumour support. The site also has a busy forum where you can ask questions and share experiences.
www.macmillan.org.uk/cancer-information-and-support/brain-tumour

carers, patients

The Brain Tumour Charity

carers, patients

The Brain Tumour Charity

The website offers a range of fact sheets, approved by the Information Standards. It covers information on diagnosis, treatments, living with a brain tumour, and suggestions for carers.
GU51 2UH www.thebraintumourcharity.org/support-information/Information-new

carers, patients

Cancer Chat

carers, patients

Cancer Research UK

Online forum for sharing of experience and discussion with cancer patients and carers
https://cancerchat.cancerresearchuk.org/

carers, patients

Headway Grampian

This charity hosts monthly meeting for people affected by brain injuries. These meetings usually have a speaker on a diverse set of subjects which is followed by time to chat and socialise and have a coffee or tea.

AB10 1TL info.biggroup@gmail.com www.headway.org.uk/supporting-you/in-your-area/groups-and-branches/scotland/brain-injury-grampian/

carers, patients

Richard House Children's Hospice

This hospice supports families whose children are living with a life-limiting health condition. Their purpose-built hospice is located in Beckton, East London and the majority of the families that they support live in East and North London. Support available includes: hospice at home, respite care, family support and end-of-life care.

E16 3RG info@richardhouse.org.uk www.richardhouse.org.uk

carers, patients

VSA

VSA offers emotional, social, and practical care and support to children, young people and their families. Their work focuses on a wide range of issues such as abuse, difficult behaviours, through to giving parents the support and information they need to respond and care for their child's needs.


AB11 5YU info@vsa.org.uk https://www.vsa.org.uk/our-services/childrens-and-family-services

carers, patients

Demelza Hospice Care for Children

Demelza deliver expert care to Children with serious or life-limiting conditions, providing support for all the family, from first diagnosis and for as long as they are needed. The support they provide includes family support, short breaks and therapies. Services are available either at one of their three sites in Kent, South East London and East Sussex, in the community, virtually, or in their own home.

info@demelza.org.uk www.demelza.org.uk

carers, patients

CLAN Cancer Support

Clan offers a dedicated, confidential service through their team of support workers for children, young people and families. Through its work, the team aims to provide information, listen to the individual, and allow children and young people to explore their difficult feelings in a safe and secure environment. Support is offered at Clan House in their dedicated space for young people. Their team regularly visit individual’s homes or schools depending on each situation. Team members are also based at Mintlaw, Elgin, Orkney and Shetland.


Clients can make an appointment or are welcome to drop in to the local centres to find out more.

AB25 2QA cfs@clancancersupport.org https://www.clancancersupport.org/services/children-families/

carers, patients

This hands-on charity gives support to families under stress in many of Scotland’s communities including Aberdeen, Moray and Inverness. They offer a tailored approach to suit each family’s needs including direct support for children, tailored to their age, circumstances and wishes.
EH9 1AT edinburghFST@childrenfirst.org.uk www.children1st.org.uk

carers, patients

Most National Health Service (NHS) treatment is free but there can be charges for some things. You may be able to get help with NHS health costs if for example you're on a low income. You may be able to get help with health costs like:


  1. prescription costs
  2. dental costs
  3. eyecare costs
  4. healthcare travel costs
  5. wigs and fabric supports
www.nhs.uk/nhs-services/help-with-health-costs/nhs-low-income-scheme-lis/

carers, patients

Edinburgh Support Group

carers, patients

The Brain Tumour Charity

Brain Tumour Action runs a friendly monthly support group in Edinburgh. The group is held at the Maggie’s Centre Edinburgh in the Western General Hospital every month. The meeting is aimed at patients, families and friends of those diagnosed with a brain tumour.



EH4 2XU edinburgh@maggies.org www.thebraintumourcharity.org

carers, patients

Citizens Advice - Leicester

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion. They do not offer drop in services.

LE1 6FB https://citizensadviceleicestershire.org/leicester/

carers, patients

Citizens Advice - Rutland

carers, patients

Citizens Advice

This Rutland-based service provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities. They also have specialist advisers for people with long-term health conditions.
https://citizensadvicerutland.org.uk/

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion. They offer information drop in sessions at the following locations:


Boston

Municipal Buildings, West Street,

Boston, Lincolnshire, PE21 8QR

Tuesday & Thursday 9.00am-12.30pm


Sleaford

North Kesteven District Council Offices,

Kesteven Street,

Sleaford,

Lincolnshire

NG34 7EF

Monday & Wednesday 9.00am - 12.30pm


North Hykeham

OneNK,

Moor Lane,

North Hykeham,

Lincoln, LN6 9A

NG34 7EF outreach@citizensadvicemidlincs.org.uk https://camidlincs.org.uk/

carers, patients

Citizens Advice - Derbyshire

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion.

SK17 6DE www.ddcab.org.uk

carers, patients

Aberdeen Citizens Advice Bureau

This service has been providing advice and information to the people of Aberdeen for over 80 years. All clients are offered free, impartial and confidential advice on issues such as benefits, debt, work-related problems, relationships and housing.

AB11 5BN Bureau@aberdeencab.casonline.org.uk www.aberdeencab.org.uk

carers, patients

Maggie's - Lanarkshire

carers, patients

Maggie's

Maggie's centre in Lanarkshire offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

ML6 0JS maggies.lanarkshire@maggiescentres.org https://www.maggies.org/our-centres/maggies-lanarkshire/

carers

Each month, brainstrust run an online meetup group for those who have been bereaved by a brain tumour diagnosis. This is a safe space to share and meet with others who understand. Our online sessions are facilitated by a coach and a counsellor.

PO31 7QG hello@brainstrust.org.uk brainstrust.eventbrite.com

carers, patients

Maggie's - Fife

carers, patients

Maggie's

Maggie's centre in Fife offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

KY2 5AH fife@maggies.org https://www.maggies.org/our-centres/maggies-fife/

carers, patients

Maggie's - Aberdeen

carers, patients

Maggie's

Maggie's centre in Aberdeen offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.



AB25 2UZ aberdeen@maggies.org www.maggiescentres.org/our-centres/maggies-aberdeen/whats-on/

carers

Carers Trust

Carers Trust puts you in contact with local services that can support you as an unpaid carer.

G13 1HN info@carers.org https://carers.org/help-for-carers/introduction

carers, patients

Marie Curie

This hospice in Bradford offers several different services, such as inpatient care and day services consisting of a variety of complementary therapies. Support for families and carers is available, and they can provide spiritual support.
BD3 9LE bradford.hospice@mariecurie.org.uk www.mariecurie.org.uk/help/hospice-care/hospices/bradford/

carers, patients

Wheatfields Hospice

carers, patients

Sue Ryder

Sue Ryder Wheatfields Hospice, based in Leeds, provides expert palliative care for people living with a life-limiting condition. They offer a huge range of support to people, from inpatient care and care in people’s own homes with the support of their expert team of community nurse specialists to day services that help people remain independent longer and offer respite to carers.

LS6 2AE wheatfields@sueryder.org https://www.sueryder.org/end-of-life-care/our-hospices-and-care-centres/find-a-local-care-service/sue-ryder-wheatfields-hospice/

carers, patients

St Gemma's Hospice

carers, patients

St Gemma's Hospice

St Gemma's Hospice offer specialist palliative care unit offering symptom management for a range of symptoms, spiritual and psychological care. Additionally they provide End of Life Care to those patients who wish to spend their final days in a Hospice or who cannot/do not want to be at Home/in Hospital.
LS17 6QD hello@st-gemma.co.uk www.st-gemma.co.uk

carers, patients

St Leonard's Hospice

carers, patients

St Leonard's Hospice

St Leonard’s Hospice provides specialist palliative care and support for local people with life-limiting illnesses. They have an inpatient unit, Sunflower Centre and Hospice@Home service. The care also extends to support families and carers. They have specialists in a wide range of roles including complementary therapy, lymphoedema care, physiotherapy, social work, bereavement, occupational therapy and spiritual care.
YO24 1GL enquiries@stleonardshospice.org.uk www.stleonardshospice.org.uk

carers, patients

Saint Michael's Hospice

carers, patients

Saint Michael's Hospice

Saint Michael's Hospice aims to improve the lives of people affected by terminal illness, those living with conditions and their families and carers in Harrogate. The services they provide include wellbeing support, symptom management and respite care, end-of-life care and bereavement support.

HG2 8QL info@saintmichaelshospice.org www.saintmichaelshospice.org

carers, patients

Macmillan Cancer Support

The Macmillan Support Line provides emotional and practical support, or they can just listen if you need to talk. They will help find the best support for you, which could be arranging for you to speak to a Macmillan cancer nurse specialist or finding relevant resources online or support in your local area. The helpline is open 7 days a week from 8 a.m. to 8 p.m.
https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/macmillan-support-line

carers, patients

Wisdom Hospice Charity

carers, patients

Wisdom Hospice Charity

The Wisdom Hospice provide support for people with a life-limiting illness across Medway and Swale. The support they provide includes in-patient services, bereavement support, family support, palliative care at home and respite care and complementary therapies.

ME1 2NU info@wisdomhospicecharity.org.uk www.wisdomhospicecharity.org.uk

carers, patients

Maggie's - Glasgow

carers, patients

Maggie's

Maggie's centre in Glasgow offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

G12 0YN glasgow@maggiescentres.org www.maggiescentres.org/our-centres/maggies-glasgow/

carers, patients

Maggie's - Oxford

carers, patients

Maggie's

Maggie's centre in Oxford offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

OX3 7LE oxford@maggies.org https://www.maggies.org/our-centres/maggies-oxford/

carers, patients

The Brain Tumour Charity and Clinical Nurse Specialists, Derby Royal Infirmary

This group meets quarterly from 12.30 p.m. to 2.30 p.m. It is aimed at patients, families and friends of those diagnosed with a brain tumour.

DE14 1AA sue.wreglesworth@thebraintumourcharity.org
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