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carers, patients

Demelza Hospice Care for Children

Demelza deliver expert care to Children with serious or life-limiting conditions, providing support for all the family, from first diagnosis and for as long as they are needed. The support they provide includes family support, short breaks and therapies. Services are available either at one of their three sites in Kent, South East London and East Sussex, in the community, virtually, or in their own home.

info@demelza.org.uk www.demelza.org.uk

carers, patients

CLAN Cancer Support

Clan offers a dedicated, confidential service through their team of support workers for children, young people and families. Through its work, the team aims to provide information, listen to the individual, and allow children and young people to explore their difficult feelings in a safe and secure environment. Support is offered at Clan House in their dedicated space for young people. Their team regularly visit individual’s homes or schools depending on each situation. Team members are also based at Mintlaw, Elgin, Orkney and Shetland.


Clients can make an appointment or are welcome to drop in to the local centres to find out more.

AB25 2QA cfs@clancancersupport.org https://www.clancancersupport.org/services/children-families/

carers, patients

This hands-on charity gives support to families under stress in many of Scotland’s communities including Aberdeen, Moray and Inverness. They offer a tailored approach to suit each family’s needs including direct support for children, tailored to their age, circumstances and wishes.
EH9 1AT edinburghFST@childrenfirst.org.uk www.children1st.org.uk

carers, patients

Most National Health Service (NHS) treatment is free but there can be charges for some things. You may be able to get help with NHS health costs if for example you're on a low income. You may be able to get help with health costs like:


  1. prescription costs
  2. dental costs
  3. eyecare costs
  4. healthcare travel costs
  5. wigs and fabric supports
www.nhs.uk/nhs-services/help-with-health-costs/nhs-low-income-scheme-lis/

carers, patients

Edinburgh Support Group

carers, patients

The Brain Tumour Charity

Brain Tumour Action runs a friendly monthly support group in Edinburgh. The group is held at the Maggie’s Centre Edinburgh in the Western General Hospital every month. The meeting is aimed at patients, families and friends of those diagnosed with a brain tumour.



EH4 2XU edinburgh@maggies.org www.thebraintumourcharity.org

carers, patients

Citizens Advice - Leicester

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion. They do not offer drop in services.

LE1 6FB https://citizensadviceleicestershire.org/leicester/

Young Lives vs Cancer

Young Lives vs Cancer have grants to support families financially. To help immediately, the charities offers a registration grant of £100. They also have other grants to support children under the age of 19 who have a brain tumour.

W6 8JA getsupport@younglivesvscancer.org.uk www.younglivesvscancer.org.uk/what-we-do/financial-support/grants/

CLAN Cancer Support

This charity can offer various therapies designed to support and alleviate some of the physical and emotional side effects that comes with a patient's cancer journey. We would recommend that you keep your GP and/or consultant advised of any therapies taken. These include therapies such as massage therapy, oncology massage, scar tissue massage, aromatherapy, reflexology and reiki. These therapies are also available at various centres throughout the highlands.

AB25 2QA enquiries@clancancersupport.org https://www.clancancersupport.org/services/complementary-therapies/

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion. They offer face to face support onMondays and Thursdays 9.30am – 3pm.  

NG1 6HS https://citizensadvicenottingham.org.uk/

carers, patients

Citizens Advice - Rutland

carers, patients

Citizens Advice

This Rutland-based service provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities. They also have specialist advisers for people with long-term health conditions.
https://citizensadvicerutland.org.uk/

patients

Olive Tree Cancer Support Centre

This centre has a successful wig recycling scheme, a drop in group, access to Macmillan welfare and benefits advice as well as an ever increasing range of classes, workshops and courses all of which form part of their wellbeing programme to support you through your cancer treatment and beyond.

RH11 7DH office@olivetreecancersupport.org.uk www.olivetreecancersupport.org.uk

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion. They offer information drop in sessions at the following locations:


Boston

Municipal Buildings, West Street,

Boston, Lincolnshire, PE21 8QR

Tuesday & Thursday 9.00am-12.30pm


Sleaford

North Kesteven District Council Offices,

Kesteven Street,

Sleaford,

Lincolnshire

NG34 7EF

Monday & Wednesday 9.00am - 12.30pm


North Hykeham

OneNK,

Moor Lane,

North Hykeham,

Lincoln, LN6 9A

NG34 7EF outreach@citizensadvicemidlincs.org.uk https://camidlincs.org.uk/

carers, patients

Citizens Advice - Derbyshire

carers, patients

Citizens Advice

This charity offer free, confidential and independent advice on a wide range of issues including employment, benefits, housing, debt, consumer rights, discrimination and relationship breakdowns to everyone regardless of age, income, ethnicity, gender or religion.

SK17 6DE www.ddcab.org.uk

carers, patients

Aberdeen Citizens Advice Bureau

This service has been providing advice and information to the people of Aberdeen for over 80 years. All clients are offered free, impartial and confidential advice on issues such as benefits, debt, work-related problems, relationships and housing.

AB11 5BN Bureau@aberdeencab.casonline.org.uk www.aberdeencab.org.uk

patients

Beatson West of Scotland Cancer Care Centre

This service aims to help you clarify any worrying thoughts, feelings or difficulties you may be having with your diagnosis. Your counsellor will listen to you, help you make sense of your feelings, and offer you emotional support. The service is offered to both inpatients and out patients as well as their immediate family before, during and after treatment. Get in touch to arrange an appointment.
G12 0YN https://www.beatson.scot.nhs.uk/patients-and-visitors/information-support-services/clinical-support-services/counselling-services/

patients

Brainwaves NI

patients

Brainwaves NI

Brainwaves NI run a series of information seminars each year in addition to organised social activities for members. Please check their website for details of meetings @ www.brainwaves-ni.org
BT38 9PZ info@brainwaves-ni.org https://www.brainwaves-ni.org/

carers, patients

Maggie's - Lanarkshire

carers, patients

Maggie's

Maggie's centre in Lanarkshire offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

ML6 0JS maggies.lanarkshire@maggiescentres.org https://www.maggies.org/our-centres/maggies-lanarkshire/

carers

Each month, brainstrust run an online meetup group for those who have been bereaved by a brain tumour diagnosis. This is a safe space to share and meet with others who understand. Our online sessions are facilitated by a coach and a counsellor.

PO31 7QG hello@brainstrust.org.uk brainstrust.eventbrite.com

carers, patients

Maggie's - Fife

carers, patients

Maggie's

Maggie's centre in Fife offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

KY2 5AH fife@maggies.org https://www.maggies.org/our-centres/maggies-fife/

carers, patients

Maggie's - Aberdeen

carers, patients

Maggie's

Maggie's centre in Aberdeen offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.



AB25 2UZ aberdeen@maggies.org www.maggiescentres.org/our-centres/maggies-aberdeen/whats-on/

carers

Carers Trust

Carers Trust puts you in contact with local services that can support you as an unpaid carer.

G13 1HN info@carers.org https://carers.org/help-for-carers/introduction

Cancer Support Yorkshire

A monthly support group for women who have a cancer diagnosis in Skipton.

BD9 6DA skiptonsupport@csyorkshire.org.uk www.cancersupportyorkshire.org.uk/centres/skipton/#whatson

carers, patients

Marie Curie

This hospice in Bradford offers several different services, such as inpatient care and day services consisting of a variety of complementary therapies. Support for families and carers is available, and they can provide spiritual support.
BD3 9LE bradford.hospice@mariecurie.org.uk www.mariecurie.org.uk/help/hospice-care/hospices/bradford/

patients

Yorkshire Brain Tumour Charuty

BTRS Support Suppers - support suppers are run in towns and cities across Yorkshire on an ad hoc basis where there are a cluster of patients and families who wish to attend. York, Halifax, Bradford, Huddersfield, Skipton and Leeds are all areas where suppers take place. BTRS runs suppers for parents who have a child with a brain tumour and for adult patients and their family.

LS6 3AA ybtcsupport@yorksbtc.org.uk https://www.yorksbtc.org.uk/

carers, patients

Wheatfields Hospice

carers, patients

Sue Ryder

Sue Ryder Wheatfields Hospice, based in Leeds, provides expert palliative care for people living with a life-limiting condition. They offer a huge range of support to people, from inpatient care and care in people’s own homes with the support of their expert team of community nurse specialists to day services that help people remain independent longer and offer respite to carers.

LS6 2AE wheatfields@sueryder.org https://www.sueryder.org/end-of-life-care/our-hospices-and-care-centres/find-a-local-care-service/sue-ryder-wheatfields-hospice/

carers, patients

St Gemma's Hospice

carers, patients

St Gemma's Hospice

St Gemma's Hospice offer specialist palliative care unit offering symptom management for a range of symptoms, spiritual and psychological care. Additionally they provide End of Life Care to those patients who wish to spend their final days in a Hospice or who cannot/do not want to be at Home/in Hospital.
LS17 6QD hello@st-gemma.co.uk www.st-gemma.co.uk

carers, patients

St Leonard's Hospice

carers, patients

St Leonard's Hospice

St Leonard’s Hospice provides specialist palliative care and support for local people with life-limiting illnesses. They have an inpatient unit, Sunflower Centre and Hospice@Home service. The care also extends to support families and carers. They have specialists in a wide range of roles including complementary therapy, lymphoedema care, physiotherapy, social work, bereavement, occupational therapy and spiritual care.
YO24 1GL enquiries@stleonardshospice.org.uk www.stleonardshospice.org.uk

patients

Cancer Research UK

If you have any questions about cancer or would like further information, you can speak to a cancer information nurse Monday to Friday between 9 a.m. and 5 p.m.
www.cancerresearchuk.org/about-us/contact-us/talk-to-our-nurses

carers, patients

Saint Michael's Hospice

carers, patients

Saint Michael's Hospice

Saint Michael's Hospice aims to improve the lives of people affected by terminal illness, those living with conditions and their families and carers in Harrogate. The services they provide include wellbeing support, symptom management and respite care, end-of-life care and bereavement support.

HG2 8QL info@saintmichaelshospice.org www.saintmichaelshospice.org

carers, patients

Macmillan Cancer Support

The Macmillan Support Line provides emotional and practical support, or they can just listen if you need to talk. They will help find the best support for you, which could be arranging for you to speak to a Macmillan cancer nurse specialist or finding relevant resources online or support in your local area. The helpline is open 7 days a week from 8 a.m. to 8 p.m.
https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/macmillan-support-line

carers, patients

Wisdom Hospice Charity

carers, patients

Wisdom Hospice Charity

The Wisdom Hospice provide support for people with a life-limiting illness across Medway and Swale. The support they provide includes in-patient services, bereavement support, family support, palliative care at home and respite care and complementary therapies.

ME1 2NU info@wisdomhospicecharity.org.uk www.wisdomhospicecharity.org.uk

patients

Calum's Cabin

A countryside retreat on the island of Bute where families with a child with cancer can come and stay. The charity also helps with travel costs to the island.
PA20 9LD enquiries@calumscabin.com www.calumscabin.com

carers, patients

Maggie's - Glasgow

carers, patients

Maggie's

Maggie's centre in Glasgow offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

G12 0YN glasgow@maggiescentres.org www.maggiescentres.org/our-centres/maggies-glasgow/

carers, patients

Maggie's - Oxford

carers, patients

Maggie's

Maggie's centre in Oxford offers a space for those living with a brain tumour and their loved ones to speak to others going through a similar experience and find advice, support and strategies for coping. It covers both emotional and practical concerns, from the day-to-day impact of diagnosis to help with money worries.

OX3 7LE oxford@maggies.org https://www.maggies.org/our-centres/maggies-oxford/

carers, patients

The Brain Tumour Charity and Clinical Nurse Specialists, Derby Royal Infirmary

This group meets quarterly from 12.30 p.m. to 2.30 p.m. It is aimed at patients, families and friends of those diagnosed with a brain tumour.

DE14 1AA sue.wreglesworth@thebraintumourcharity.org

patients

Yorkshire Cancer Community

Yorkshire Cancer Community is an information and support network for people affected by cancer and those who support patients and carers in the Yorkshire and Humber area.

WF1 3LQ info@yorkshirecancercommunity.co.uk https://www.yorkshirecancercommunity.co.uk/brain-tumour/

carers, patients

Beatson West of Scotland Cancer Centre

This helpful service organises transport to the Beatson West of Scotland Cancer Centre for patients receiving treatment.
G12 0YN https://www.beatson.scot.nhs.uk/find-us/patient-transport/#:~:text=For%20transport%20queries%20from%20patients,for%20out%20of%20hours%20queries.

patients

Macmillan Cancer Support

This centre not only provides advice and information about which benefits, tax credits and charitable grants are available but they can also help you to apply for these grants and support with health costs such as reimbursing travel to hospital for treatment.
BN2 5BD horizoncentre@macmillan.org.uk www.macmillan.org.uk/information-and-support/coping/getting-support/local-information-centres/horizon-centre.html#260100

patients

Macmillan Cancer Support

The trained counsellors here will help you, through listening and asking questions, to talk fully about your concerns in a way that’s usually not possible or appropriate in either personal, professional, or social settings. Counselling is offered for up to twelve sessions initially.
BN2 5BD horizoncentre@macmillan.org.uk https://www.macmillan.org.uk/cancer-information-and-support/get-help/macmillan-services/macmillan-horizon-centre

patients

Macmillan Cancer Support

The hour-long therapy sessions here are to be used alongside conventional medical treatment and aims to promote relaxation, reduce anxiety, ease symptoms and help patients finding coping strategies. Therapies here include aromatherapy, acupuncture, massage, reflexology, Reiki and Jin Shin Jyutsu.
BN2 5BD horizoncentre@macmillan.org.uk www.macmillan.org.uk/information-and-support/coping/getting-support/local-information-centres/horizon-centre.html#260101

carers, patients

AbilityNet

A charity which offers free technology for disabled and older people. They offer a free helpline and factsheets, free online assessment tools and also they have a network of AbilityNetHelp Disclosure checked volunteers who can help with home computers. They can do this over the phone, online or in person in the persons own home.
enquiries@abilitynet.org.uk www.abilitynet.org.uk

carers, patients

Macmillan Cancer Support

An online resource that shares support groups for all kinds of cancer, including generic cancer support groups. You can search for a support group by entering your postcode to see all the groups in your area,

https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/local-support-groups

carers

Marie Curie

Marie Curie provide information, advice and support for people living with a life-limiting illness and their families.

Their website has a range of practical information for caregivers as well as a support line, online chat and online community

www.mariecurie.org.uk/carer

patients

The Teenage Cancer Trust

Teenage Cancer Trust has created this support network so you can find and contact people who may understand what you are going through. Sign up to the network, create your online profile, and start searching for people to get in touch with online.
www.teenagecancertrust.org/support-network/search/

carers, patients

Headway Isle of Wight

carers, patients

Headway

Headway is a volunteer-led charity that promotes understanding of all aspects of brain injury and provides information, support and services to patients, their families and carers.

Headway IOW provide a range of services including family and carer support and community support.

PO30 2QR claire.headwayiow@gmail.com https://www.headway.org.uk/supporting-you/in-your-area/groups-and-branches/south-east/headway-isle-of-wight

carers, patients

Macmillan money advice

carers, patients

Macmillan Cancer Support

A Macmillan benefits adviser can offer specialist advice to help ease financial concerns, including information on benefits, tax credits, grants and loans. You can speak to these advisers face to face or over the phone, and they'll help you to work out what financial help you could be entitled to. Follow the web link to find one near your home or call Macmillan Monday to Friday, 8am to 6pm.

https://www.macmillan.org.uk/cancer-information-and-support/get-help/macmillan-support-line/money-advisers

carers, patients

able2travel Travel Insurance

carers, patients

Voyager Insurance Services Ltd

They aim to offer a cost effective travel insurance solution irrespective of age or medical history. If you have a medical condition or are over 65 then you should call, and not visit the website for a quotation.
info@able2travel.com www.able2travel.com

patients

Isle of Wight Youth Trust

The Isle of Wight Youth Trust offers a confidential and independent counselling service for young people aged 13-25, called Youth Trust Counselling. Children under the age of 13 are offered a counselling service called the Under 13s Service, and access is through referral by a GP. Both services are free of charge.
PO30 1XA info@iowyouthtrust.co.uk www.iowyouthtrust.co.uk
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